MPS (Mucopolysaccharide Diseases)

World MPS Day highlights the need to raise awareness about Mucopolysaccharide Diseases, which is part of a larger group of disorders known as Lyosomal Storage Disorders, rare, life-threatening metabolic conditions. Some of the symptoms of MPS include stunted growth, cardiomyopathy, hernias, stiff joints and hearing loss. 

In conjunction with World MPS Day, we speak to Norhayati Abdul Hamid, the secretary of the Malaysian Lyosomal Diseases Association and mother of two daughters with MPS, about living with this illness and treatment in Malaysia.