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the-bigger-picture · health-and-living · 25 Oct 2011 · 25 mins listen
A rare condition, lyosomal storage disorder is not something that is known or discussed widely amongst parents and medical practitioners, yet it affects Malaysian children and their families greatly, even more so as not much is known about it.
Chia Kian Foon from the Malaysia Lyosomal Diseases Association and mother of 2 children with Lyosomal Storage Disorder discusses living with the condition and the challenges faced, while Dr. Ngu Lock Hock, consultant geneticist, offers a medical viewpoint.
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