Dr Nurul Izzaty Hassan, Mother and Lecturer

Branden Lim, 13

Albert Koo, Living with Motor Neuron Disease | Dr Loh Ee Chin, Consultant Palliative Care Physician

Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist | Carol Lim, Living with Neurofibromatosis

Nur Azizah Zamri | Mohd Farhan bin Mohd Sait

Nadiah Hanim Abdul Latif, President, Malaysian Rare Diseases Society (MRDS) | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist, University Malaya Medical Centre

Dr George Lee, Consultant Urologist | Prof Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist | Rubee Ahmad, Parent

Dr Azlina Ahmad Annuar, Neurogeneticist

Jaden Lim, Living with Growth Hormone Deficiency and Pituitary Microadenoma

Dr Khor Swee Kheng, Independent Health Policies Specialist

Dr Azlina Ahmad Annuar, Neurogeneticist | Assoc Prof Dr Cheah Pike See, Department of Human Anatomy

Dr Azlina Ahmad Annuar, Consultant Neurogeneticist | Dr Ch’ng Gaik Siew, Consultant Clinical Geneticist & Paediatrician | Yap Sook Yee, Parent and Co-founder

Dr George Lee, Consultant Urologist | Dr Ngu Lock Hock, Consultant Paediatrician | Sivasangaran Kumaran, Father

Dr Azlina Ahmad Annuar, Neurogeneticist | Safiah bt Safian, Parent

Dato’ Hatijah Ayob, President of Malaysian Rare Disorders Society, Chair of the Rare Disease Alliance Foundation Malaysia | Professor Dr. Thong Meow Keong, Professor of Paediatrics and Consultant Clinical Geneticist at UMMC, Advisor of Malaysian Rare Disorders Society

Dr Azlina Ahmad Annuar, Neurogeneticist | Azhar Talib, President