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Brain Waves #37: SMA Awareness Month - Living With A Rare Disease During COVID-19

45 mins·16:00, 13 Aug 2020
podcast image

Brain Waves #37: SMA Awareness Month - Living With A Rare Disease During COVID-19

45 mins
·
16:00, 13 Aug 2020
·

Living with a rare disease can already be challenging, and even more so during a global pandemic. On this Brain Waves episode, we speak to neurogeneticist Dr Azlina Ahmad Annuar and Siti Safura Jaapar who lives with spinal muscular atrophy to find out how people with rare diseases, especially SMA, are coping as well as how the pandemic has affected the advocacy for access to much-needed treatment in Malaysia.  

Image Source: AFP

Presenter: Tee Shiao Eek

Producer: Lim Sue Ann

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