BFM 89.9
The Business Station
Budget 2023: We Need To Invest in Rare Diseases
46 mins·16:00, 3 Oct 2022
Budget 2023: We Need To Invest in Rare Diseases
46 mins
·
16:00, 3 Oct 2022
·
Recommended
Guest: Nadiah Hanim Abdul Latif, President, Malaysian Rare Diseases Society (MRDS), Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist, University Malaya Medical Centre
There are more than 7,000 types of rare diseases, yet the interest and investment into rare diseases are often limited to a handful of more well-known diseases. For people living with rare diseases and their families, the journey from diagnosis to accessing treatment can take a huge emotional and financial toll. Ahead of the tabling of Budget 2023, we speak to Nadiah Hanim Abdul Latif, President of the Malaysian Rare Diseases Society and Prof Dr Thong Meow Keong, consultant paediatrician and clinical geneticist from UMMC on how we can do better to support the rare disease community in Malaysia and whether we’ll finally see rare diseases being on the priority list.
Brought to you by Mah Sing. Reinvent Spaces. Enhance Life.
Click here to view a transcript of the show.
Image credit: Shutterstock
Presenter: Lim Sue Ann
Producer: Lim Sue Ann
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