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Brain Waves #37: SMA Awareness Month - Living With A Rare Disease During COVID-19
45 mins·16:00, 13 Aug 2020
Brain Waves #37: SMA Awareness Month - Living With A Rare Disease During COVID-19
45 mins
·
16:00, 13 Aug 2020
·
Recommended
43 mins
Living with a rare disease can already be challenging, and even more so during a global pandemic. On this Brain Waves episode, we speak to neurogeneticist Dr Azlina Ahmad Annuar and Siti Safura Jaapar who lives with spinal muscular atrophy to find out how people with rare diseases, especially SMA, are coping as well as how the pandemic has affected the advocacy for access to much-needed treatment in Malaysia.
Image Source: AFP
Presenter: Tee Shiao Eek
Producer: Lim Sue Ann
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